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Supporting everyone in the pituitary community, every step of the way.

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October is Pituitary Awareness Month

This year, we’re putting symptoms in the spotlight. Take a look at our campaign content and get support with managing your challenging symptoms.

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Pituitary Conditions
Symptoms, Diagnosis & Treatment
Living with a Pituitary Condition
Healthcare Professionals
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  • Pituitary Conditions
  • Symptoms, Diagnosis & Treatment
  • Living with a Pituitary Condition
  • Healthcare Professionals

Have you been diagnosed with a pitutiary condition?

We're here to help you understand what this means. Take a look below to find the information you need.

AVP Deficiency (Diabetes Insipidus)
Arginine Vasopressin Deficiency (AVP-D), formerly known as Cranial Diabetes insipidus (DI), is caused by a problem with either the production, or action, of the hormone vasopressin (AVP). If you have DI your kidneys are unable to retain water.
Cushing’s Disease
Cushing's is a condition caused by having too much of a hormone called cortisol in your body. It can be serious if it's not treated. Symptoms usually develop gradually and so the diagnosis may not be clear for some time.
Prolactinoma
A prolactinoma is a prolactin-producing tumour of the pituitary gland. The symptoms produced by a prolactinoma depend on the sex of the patient and the size of the tumour.
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Our Impact

Our vision is that all people with pituitary conditions live well, now and in the future. We work with everyone with a pituitary condition, their support networks and healthcare professionals to raise pituitary awareness and reduce time to diagnosis.

34,900+

support enquiries answered

2100+

members in our network

95%

of attendees rated our events good or excellent

Our Story Become a Member

Stories from our community

Tilly Rose smiling under a tree with pink flowers, with the Rare Disease Day logo at the bottom left of the picture

‘I have become a zebra with too many stripes’ – Tilly Rose’s story for Rare Disease Day 2026

Francesca is in a hospital bed drinking from a cup out of a straw. She has medical tape and packing over her nose.

Francesca’s story: A three-year undiagnosed rollercoaster

Risa’s story: Living life to its fullest with Acromegaly

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Join an event

Living well with pain and headaches

22/10/2026

Join us for the opportunity to hear about how to life a happy, fulfilled life despite the pain.

York October Support Group Meeting

24/10/2026

Friendly support for anyone affected by pituitary conditions in the York area.

Sussex October support group meeting

24/10/2026

Friendly support group for those affected by pituitary conditions in the Sussex area.

Sussex October support group meeting

24/10/2026

Friendly support group for those affected by pituitary conditions in the Sussex area.

Venice Marathon 2026

25/10/2026

This predominantly flat and fast course starts in front of Villa Pisani, taking runners along the Riviera del Brenta, a landscape rich in history, art and culture.

Sleep, circadian rhythms and managing fatigue

27/10/2026

Join us for the chance to hear from Professor David Ray, Professor of Endocrinology at The University of Oxford.

More events

News and updates

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Research opportunity: Research study on hypogonadism and testosterone gel

7th October 2026

Spit, not blood: What saliva can tell us about cortisol

30th September 2026

The Leeds and West Yorkshire support group is launching!

29th September 2026
More news and updates

We're here to support everyone affected by pituitary conditions. Your donation makes this possible.

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