Who we are
It is estimated that there are approximately 70,000 people with a pituitary condition in the United Kingdom. To meet the need for information and support The Pituitary Foundation was set up in 1994 and was subsequently registered as a charity in September 1996.
The Pituitary Foundation is a national support and information organisation for pituitary patients, their families, friends and carers. We are the UK's leading charity providing support to people affected by disorders of the pituitary gland such as Acromegaly, Cushing's, Prolactinoma, Diabetes Insipidus and Hypopituitarism.
The Pituitary Foundation operates throughout the UK and Republic of Ireland. We are a membership organisation and have in the region of 2,300 subscribed members. We are a relatively small charity, with ten members of staff and supporting our work we have a team of 100 volunteers across the country.
The Pituitary Foundation's Objectives are to:
- To promote the relief and treatment of persons suffering from pituitary disorders and related conditions and diseases, and their families, friends and carers, and to provide information and support;
- To promote and support research and to disseminate for the public benefit the results of any such research.
To do this, The Pituitary Foundation's aims to:
- Continue to be known as a supportive and caring organisation.
- Continue to provide a quality service.
- Raise awareness of The Pituitary Foundation and pituitary disease within both the medical profession and general public.
- Make our patient support services more accessible.
- Continue developing our publications to provide quality information to patients, carers, families and health care professionals.
- Support, develop and raise awareness of our network of local support groups.
- Build a volunteer programme that offers skills training, guidance, appreciation and recognition.
- Develop the capacity of fundraising to establish financial stability, which ensures continued provision of core services and enables The Foundation to be driven by members' needs.
- Further strengthen relationships between The Foundation and the endocrine community of consultants, nurses and members of multi-disciplinary teams.
- Create partnerships with other charitable organisations to streamline and augment services and refer appropriately.
- Maintain a highly professional administrative and organisational structure including appropriate governance, financial practice, donor recruitment and appreciation and human resources policy.
The Pituitary Foundation is currently funded entirely through, membership fees, voluntary donations, support from the pharmaceutical industry and grants from grant-making trusts.
The Pituitary Foundation’s goal is to assist you along your journey with information, support and understanding. To do this, our service is available to patients, family members, friends, health care professionals and the general population.
We must understand the needs of our pituitary community and therefore welcome you to share your stories, your views and your feedback on our services.
However, in common with most charities, we have constraints on our financial and staffing resources, therefore, there has to be limits on the service we offer. In practical terms this means:
- We cannot provide individualised case management for patients or family members.
- We cannot intervene in any circumstance faced by individual members of our community with anyone, including employers and medical professionals. Nor can we assist members with procuring medical appointments or tests and we cannot evaluate cases and provide expert diagnosis or treatment advice.
- We cannot offer funds to individuals.
- We cannot offer services to pituitary patients outside the United Kingdom or the Republic of Ireland.
- We cannot take on personal awareness campaigns within the NHS, other government agencies or amongst the general public.
However there are many things we can do to help and support.
We can offer a listening ear, information and general advice to assist you in being your own advocate. We can also signpost you to relevant services who can offer further information and support.
We will endeavour to listen to your suggestions as to our current services and future growth. If evidence supports the discovery of a need for the majority of the community, we will make every effort to include it in current programmes or build programmes to meet that need (should funding allow).