The last day of February
Rare Disease Day takes place on the last day of February each year. This year it will be on the 28th February. The main objective of the campaign is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on peoples’ lives.
Each year we celebrate rare disease day. There will be different ways of getting involved, from sharing photos on social media, attending an event, or sharing your story.
Rare Disease Day was launched by EURORDIS-Rare Diseases Europe and its Council of National Alliances in 2008.
Get involved!
There are lots of ways you can get involved in Rare Disease Day. You might want to share a photo to show solidarity with people living with a rare disease in your community! Share a photo with painted hands on social media using #RareDiseaseDay and tag @rarediseaseday. You can also find lots of downloadable materials to create your own content on the Rare Disease Day website.
Every year, thousands of events are organised around the world to mark the occasion of Rare Disease Day.
You could organise an event at work or with friends and family, throughout February, to raise awareness. Don’t forget to share pictures and videos using #RareDiseaseDay.
Share your story
You can raise awareness about rare diseases and their impact on peoples’ lives by sharing your story of living with a rare disease or caring for someone that does. You can share your stories with us by emailing [email protected], or you can share them with Rare Disease Day on their website.
You can stay up to date with the latest news from this year’s Rare Disease Day campaign by following them on Facebook, Twitter and Instagram.
