Rare Disease Day 2021


Sunday 28th February

Rare Disease Day is the official international awareness-raising campaign for rare diseases. Rare Disease Day takes place on the last day of February each year. The main objective of the campaign is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.

The key messages of the 2021 campaign are:

Rare is many.
Rare is strong.
Rare is proud.

Rare Disease Day was launched by EURORDIS-Rare Diseases Europe and its Council of National Alliances in 2008.

Rdd -logo

Get Involved!

On social media:

  • Share a photo to show solidarity with people living with a rare disease in your community! Share a photo with painted hands on social media using #RareDiseaseDay and tag @rarediseaseday.
  • Add the official Twibbon and Facebook frame to your social media profiles!
  • Stay up to date with the latest news from this year’s Rare Disease Day campaign by following them on Facebook, Twitter and Instagram

Organise an event:

Every year, thousands of events are organised around the world to mark the occasion of Rare Disease Day. Organise an event at work, with your friends or family, during or around the month of February to raise awareness. Don't forget to share pictures and videos using #RareDiseaseDay

Share your story:

Raise awareness about rare diseases and their impact on peoples’ lives by sharing your story of living with a rare disease or caring for someone that does. You can submit a written or video testimony on the Rare Disease Day website and read the stories already uploaded!

Attend an event:

Virtual parliamentary event – Wednesday 24 February

As we can’t meet in person this year, Rare Disease UK are instead hosting a virtual parliamentary event bringing people together from across the UK. We’ll be hearing from people affected by rare conditions, exploring the UK’s Rare Diseases Framework which promises to improve the lives of all those affected by rare conditions and hearing from health ministers from across the UK about how they plan to implement the Framework in their nation. You can register for the event here