Having a long-term conditions may impact your ability to work, however employers should be able to provide relative adjustments to support you.

Being able to work can be a positive experience in itself for your own self-esteem and social interaction. In most cases, employment is a necessity for financial reasons.

After diagnosis and treatment, you may find that you can go on to lead a ‘normal’ or ‘near-normal’ life once you have achieved good hormone replacement therapy. Some people may not need hormone therapy. However, there are others who have different experiences. If you are still struggling with symptoms then working may cause some challenges with your existing employment or finding work.

You may need extra flexibility in your work to help with possible fatigue, pain, unpredictable symptoms and regular medical appointments and tests.

Pituitary Foundation proforma letter

If you are having troubles with your employer understanding your condition, The Pituitary Foundation has a proforma letter that consultants can personalise with your health details and send to your employer.

It is important to note that you will need to sign a letter giving approval to divulge your sensitive health data to your employer. You will need to arrange this with your consultant, the secretary or the nurse.

Unfortunately, we do not give the proforma letter to patients but only directly to consultants.Many consultants provide these letters for patients as a matter of course, and we can provide your consultant with a pro-forma if they would prefer. If this is desired please let us know and we can email a copy.*

If you are having significant difficulty with communication with your consultant and are also having employment issues, then you need to discuss this with your Disability Employment Advisor. You can normal find these at your local we cannot get involved in individual cases Job centre, contact your local Citizen’s Advice Bureau or ACAS. We cannot get involved in individual cases.

*We do not send uninvited proforma letters to consultants as we do not intervene in a patient/consultant relationship in any way except to provide proforma letters and this is only done if invited by the consultant and patient.