Brain Injury Hub - an on-line support centre for families of children affected by acquired brain injury and offers a wealth of fully-referenced information about childhood acquired brain injury. Created by clinicians at The Children’s Trust, the country’s largest residential rehabilitation centre for children with acquired brain injury, it includes practical advice and the facts about a condition that’s often misunderstood, along with classroom strategies for education professionals. An open on-line forum gives families the opportunity to share their stories and experiences.
British Society for Paediatric Endocrinology & Diabetes - BSPED provides information on gland and growth disorders, including booklets.
Child Growth Foundation - Support, research funding, public education and growth monitoring. Online discussion forums.
Contact a Family - Contact a Family offers support and services to families including a helpline, nationwide contacts, information for professionals, developmental advice to support groups, informational materials and campaigning.
Education and Resources for Improving Childhood Continence (ERIC) - Information, support, online forums for all ages, professional information, product sales, literature, newsletter, research, practical advice and a helpline for nightime bedwetting and soiling.
Histio UK - LCH is a disease characterised by an abnormal production of histiocytes (white blood cells that are part of the immune system). Many children with LCH also have Diabetes Insipidus. Histio UK is a collaboration between Histiocytosis UK and the Histiocytosis Research Trust.
Magic Foundation - USA Support organisation for children with growth disorders (Major Aspects of Growth In Children).
Metabolic Diseases in Children (CLIMB) - CLIMB (Children Living with Inherited Metabolic Diseases) funds research, provides information, support and advice and supports families with grants and by educating professionals.
Newlife Foundation for Disabled Children - cares for all disabled and terminally ill children and is led by professional nurses. Services are manned by qualified and experienced nurses and they also facilitate an Equipment Grants Service.
Young Minds Trust - Services to protect young people's mental health including a helpline, patient information, campaigning & many publications.