Condition-specific

Addison's Disease Self Help Group - ADSHG offers extensive information, newsletters and campaigning

Androgen Insensitivity Syndrome Support - Support groups, online support, information, campaigning, newsletters, links to other organisations in different countries, information in different languages 

Anorchidism Support Group - Telephone advice and support, newsletter, linking members together

Association for Multiple Endocrine Neoplasia Disorders (MEN) - AMEND is a membership organisation with newsletters, telephone buddies, publications 

British Acoustic Neuroma Association (BANA) - An acoustic neuroma (or vestibular schwannoma) is a brain tumour which is benign and in most cases is usually slow growing. Acoustic neuroma is usually discovered after the patient complains of symptoms such as hearing loss, balance difficulty or tinnitus. 

British Thyroid Foundation - support, information, regional support groups, research funding and books available for purchase 

Brain Tumour Action - Self-help news and discussion group, online forum, support groups, befrienders 

Changing Faces - A charity to help people with a disfigurement to live the life they want.

Congenital Adrenal Hyperplasia - CAH has support groups, conferences, newsletters, books, leaflets and information

Daisy Network Premature Menopause Support Group - is a membership organisation with networkers, tele-counselling, factsheets, online forum, newsletter and books available to purchase

Diabetes UK - works for people with diabetes, funding research, campaigning and helping people live with the condition

Familial Isolated Pituitary Adenoma (FIPA) - A small number of patients with pituitary adenomas have family members with similar disease. Some of these patients belong to FIPA families. This website will be a valuable resource for FIPA patients, their families and the health care professionals who care for them. 

Focus Families - for Parents, Carers, Families and professionals of children with Septo Optic Dysplasia or Optic Nerve Hypoplasia

Infertility Network UK - Membership organisation with an advice line, regional network, helpline, local groups, medical advisors, leaflets, factsheets & product sales

IBS Network (Irritable Bowel Syndrome) - national charity for Irritable Bowel Syndrome.  Our mission is to provide information, advice and support for people with IBS and those who care for them and to work alongside health care professionals to facilitate self care.

Klinefelter's Syndrome - Membership organisation which has a newsletter and works to create awareness

Macmillian - Offers practical advice, nurse helplines and other information

Momentum - Provides a wide range of support to people with an acquired brain injury or other neurological conditions, ranging from initial assessment to return-to-work help. 

National Association for Pre-menstrual Syndrome (NAPS) - Online forum, newsletter, online information, membership, guidelines 

National Osteoporosis Society - a membership organisation, awareness, prevention, diagnosis, treatment, helpline, support groups & information 

Restricted Growth Association (RGA) - has a newsletter, mutual support and encouragement, self-help, advisory booklets, membership, medical advice, welfare, counselling & works to create awareness 

Sexual Advice Association - an awareness, education, support membership organisation with newsletters and medical information

Tall Club - A not-for-profit organisation providing information and promoting the interests of tall people. 

TEDct Thyroid Eye Disease Charitable Trust provides information, care & support to those affected by thyroid eye disease 

Turner Syndrome Support Society - offers membership, newsletter, publications (available for purchase), Lifelong Guidance and Support Book  

Verity-PCOS - Polycystic Ovary Syndrome discussion boards, local groups, online information, factsheets, membership, newsletter & conferences 

Vitiligo Society - a membership organisation with newsletters, research funding, research participation opportunities and works to create awareness