Condition-specific
Addison's Disease Self Help Group - ADSHG offers extensive information, newsletters and campaigning
Androgen Insensitivity Syndrome Support - Support groups, online support, information, campaigning, newsletters, links to other organisations in different countries, information in different languages
Anorchidism Support Group - Telephone advice and support, newsletter, linking members together
Association for Multiple Endocrine Neoplasia Disorders (MEN) - AMEND is a membership organisation with newsletters, telephone buddies, publications
British Acoustic Neuroma Association (BANA) - An acoustic neuroma (or vestibular schwannoma) is a brain tumour which is benign and in most cases is usually slow growing. Acoustic neuroma is usually discovered after the patient complains of symptoms such as hearing loss, balance difficulty or tinnitus.
British Thyroid Foundation - support, information, regional support groups, research funding and books available for purchase
Brain Tumour Action - Self-help news and discussion group, online forum, support groups, befrienders
Changing Faces - A charity to help people with a disfigurement to live the life they want.
Congenital Adrenal Hyperplasia - CAH has support groups, conferences, newsletters, books, leaflets and information
Daisy Network Premature Menopause Support Group - is a membership organisation with networkers, tele-counselling, factsheets, online forum, newsletter and books available to purchase
Diabetes UK - works for people with diabetes, funding research, campaigning and helping people live with the condition
Familial Isolated Pituitary Adenoma (FIPA) - A small number of patients with pituitary adenomas have family members with similar disease. Some of these patients belong to FIPA families. This website will be a valuable resource for FIPA patients, their families and the health care professionals who care for them.
Focus Families - for Parents, Carers, Families and professionals of children with Septo Optic Dysplasia or Optic Nerve Hypoplasia
Infertility Network UK - Membership organisation with an advice line, regional network, helpline, local groups, medical advisors, leaflets, factsheets & product sales
IBS Network (Irritable Bowel Syndrome) - national charity for Irritable Bowel Syndrome. Our mission is to provide information, advice and support for people with IBS and those who care for them and to work alongside health care professionals to facilitate self care.
Klinefelter's Syndrome - Membership organisation which has a newsletter and works to create awareness
Macmillian - Offers practical advice, nurse helplines and other information
Momentum - Provides a wide range of support to people with an acquired brain injury or other neurological conditions, ranging from initial assessment to return-to-work help.
National Association for Pre-menstrual Syndrome (NAPS) - Online forum, newsletter, online information, membership, guidelines
National Osteoporosis Society - a membership organisation, awareness, prevention, diagnosis, treatment, helpline, support groups & information
Restricted Growth Association (RGA) - has a newsletter, mutual support and encouragement, self-help, advisory booklets, membership, medical advice, welfare, counselling & works to create awareness
Sexual Advice Association - an awareness, education, support membership organisation with newsletters and medical information
Tall Club - A not-for-profit organisation providing information and promoting the interests of tall people.
TEDct - Thyroid Eye Disease Charitable Trust provides information, care & support to those affected by thyroid eye disease
Turner Syndrome Support Society - offers membership, newsletter, publications (available for purchase), Lifelong Guidance and Support Book
Verity-PCOS - Polycystic Ovary Syndrome discussion boards, local groups, online information, factsheets, membership, newsletter & conferences
Vitiligo Society - a membership organisation with newsletters, research funding, research participation opportunities and works to create awareness
