As we get ready to launch our new support group in Kent, we hear from the new support group leader Lauren about her pituitary journey so far.
Lauren’s story
Hi, I’m Lauren, I was diagnosed with acromegaly 10 years ago. I have had numerous operations and medical therapies to ensure disease control. Consequently, I have also had chronic problems with my right eye. I was inspired to study nursing after the treatment I received from my endocrine nurses changed my life. I hope to achieve the same in my career, and this has also encouraged me to volunteer with the Pituitary Foundation.
I enjoy spending time with friends, family, and my dog, Monty!
I turned to the Pituitary Foundation to find a support group shortly after my diagnosis as Acromegaly left me feeling lonely, confused and misunderstood at times. I attended my first support group in Birmingham in 2017, which was quite a trek for me as I live in Kent. However, this was well worth the travel, the support, story-sharing, sharing and comparing experiences were life-changing. It made me feel as if I was not alone in this journey, and soon after, I had many new friends to share parts of the journey with and see if they had experienced similar things or even ask for advice! This was the first time I had met other people face to face who shared the same illness as me, there is nothing like speaking to other people who get it.
Now I have finished my nursing studies, I am pleased to be setting up a Kent Support Group, for all the people who are newly diagnosed, mid-treatment and or are veterans of their disease.
I’m excited for people to experience these feelings of being understood, supported and connected to others, and even to share their stories to help others. All in a safe environment, that will allow people to meet and discuss their experiences.
If anyone feels apprehensive about attending a support group, I will say this is a safe space, and I will do my utmost to ensure you feel supported. Lastly, please don’t miss the opportunity to meet people who have experienced a similar journey to yourself.
Hope to see you soon, Lauren.
