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Pegvisomant is now available in Scotland

The Pituitary Foundation is delighted to hear that this vital medication will now be made available on the NHS to patients with uncontrolled Acromegaly in Scotland. 

Why I wanted to write ‘Living with Hypopituitarism and other things that happened to come along’

Patient and author, Marilyn Harvey, tells us why she decided to write her book, 'Living with Hypopituitarism and other things that happened to come along’.

Update on supplies of Hydrocortisone Sodium Phosphate (ex Efcortesol)

November 2017 - Concordia International have given their latest update on the supplies of Hydrocortisone Sodium Phosphate (ex Efcortesol).

Jim’s story - diagnosed by my optician

Jim tells us how a routine eye examination identified a pituitary macro adenoma. He also encourages everyone to attend these examinations even if they think there is no need.

Salford Royal NHS Foundation Trust - Patient Seminar Day

Salford Royal NHS Foundation Trust is holding a Pituitary patient seminar event on 10th November 2017 at Britannia Hotel on Portland Street, Manchester. 

Working with opticians to improve diagnosis times for pituitary patients

The Pituitary Foundation is currently running a campaign with optometrists to raise awareness and try to decrease diagnosis times. Here we have a story from patient, Phil, who talks about being diagnosed immediately by his optician.

Christine's story - Acromegaly

Christine tells us about her long diagnosis, dealing with Acromegaly, and how the lack of knowledge about adrenal insufficiency in hospital nearly lost her her life.

Training for marathons and other endurance events for patients with adrenal insufficiency

For those patients who are taking part in marathon events, we provide general guidance to help you keep safe and well whilst running.

Pat’s Story – a carer’s review 12 years on

"Looking back over the last 12 years, since Tony had his diagnosis, (pituitary apoplexy from a macro prolactinoma) we have at times had quite a roller coaster of a ride!"

Changes to ambulance staff guidelines for treating adrenal crisis

During the last nine months The Foundation has been involved in a review process of the guidelines for adrenal crisis produced by The Joint Royal Colleges Ambulance Liaison Committee. We are delighted to announce that our recommendations have been incorporated to the UK manual.