An 8 year old's account of his experience with DI and his reasons for wanting to fundraise.
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Would you like to attend our 2017 General Meeting?
Position statement regarding price hikes of medicines
Dan tells us about his experiences of living with two rare diseases.
The Rare Disease Day theme this year is Research so we thought we'd share with you some our research findings from a recent survey.
Lawrie's journey before and after his pituitary tumour diagnosis.
A prolactinoma is a prolactin-producing tumour of the pituitary gland. This is a benign tumour, and not a brain tumour or cancer.
Tara Palmer-Tomkinson's family confirm her cause of death was not linked to her pituitary tumour
Read more about Rare Disease Day and help us support this campaign!
An extremely positive story from a family who have experienced pituitary conditions for years.