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Help us support Rare Disease Day 2017!

Read more about Rare Disease Day and help us support this campaign!

A patient with two rare diseases - Dan's story

Dan tells us about his experiences of living with two rare diseases.

Research is the campaign theme for Rare Disease Day 2017

The Rare Disease Day theme this year is Research so we thought we'd share with you some our research findings from a recent survey.

Diabetes Insipidus and me - an 8 year old's story

An 8 year old's account of his experience with DI and his reasons for wanting to fundraise.

Prolactinoma - from the view of a positive pituitary family!

An extremely positive story from a family who have experienced pituitary conditions for years. 

Kelly & Ian's story - Baby Isabella's non-functioning pituitary gland

Young Isabella Andrews was born with a non-functioning pituitary gland. Here mum Kelly tells us her story.

Laura's story - Acromegaly and Pan-hypopituitarism

Ten years ago I was diagnosed with a tumour on my pituitary gland that was causing a disease called acromegaly.

Lawrie's story - journey of pituitary tumour diagnosis

Lawrie's journey before and after his pituitary tumour diagnosis.

Martin's story - My adventures with a Craniopharyngioma

Martin's story of his Craniopharyngioma.

Michael's story - Acromegaly

A normal life disrupted by acromegaly, but managed effectively. Michael’s story.