Help us support Rare Disease Day 2017!
Tuesday 28th February
Rare Disease Day takes place on the last day of February each year - well known for being a ‘rare’ day in itself.
The main objective of this day is to raise awareness amongst the general public, as well as influencing the decision-makers in this field who ultimately impact on patient’s lives.
The campaign targets the general public primarily, but also policy makers, public authorities, industry representatives, researchers, and health professionals.
A disorder or disease in Europe is defined as rare when it affects fewer than 1 in 2000 people. The lack of knowledge and quality of information can result in delays in diagnosis and for a lot of people, an initial misdiagnosis.
As pituitary patients suffer from rare disorders themselves, this is a perfect campaign for us to get involved with. Read more about this campaign on the Rare Disease Day website.
To get involved and help us spread awareness you can:
- Follow the campaign on social media
- Posting this message into your Twitter feed and link our website:
'Happy Rare Disease Day! Today I am raising awareness about rare diseases and their impact on patients' lives #rarediseaseday #pituitary'
- Visit our Facebook page to find out more about how we are supporting rare disease day and how you can get involved. Share our posts to increase awareness.
- Tell your story and maybe include photos or videos
- Organise any awareness raising activity – download helpful materials from Rare Disease Day and download our free resources which could also be used at your event.
To see what events are happening worldwide click here.
Read our other Rare Disease Day articles:
- Research is the campaign theme
- A patient with two rare diseases - Dan's story
- Diabetes Insipidus & me - an 8 year old's story
Please follow us on Facebook for more posts and rare disease articles throughout next week. Get involved, share information, and help us raise awareness in any way that you can!