Pegvisomant is now available in Scotland and Wales
The Pituitary Foundation is delighted to hear that this vital medication will now be made available on the NHS to patients with uncontrolled Acromegaly in both Scotland and Wales.
Over the last few months The Foundation has been involved with the Scottish Medicine Consortium's and the AWMSG's assessment of Pegvisomant. We were pleased to have been invited to take part in these well managed medication appraisal processes, which we feel allowed for the patient and carer perspective to be thoroughly considered. We submitted case studies and information about Acromegaly, ensuring there was clear evidence of the devastating consequences of living with uncontrolled Acromegaly and the impact on quality of life. The Foundation completed patient group submission reports, and we then took part in the PACE meeting in Glasgow alongside various endocrinologists and assessors.
Thank you very much indeed to the patients who took the time to complete our questionnaire about living with uncontrolled Acromegaly, your input was invaluable.