Stories from our community - Pituitary Foundation

Sudden vision loss and the importance of a correct diagnosis – Helen’s story

From patient to paramedic – Maria’s story

Maria’s story of resilience with undiagnosed adrenal crisises

‘I have become a zebra with too many stripes’ – Tilly Rose’s story for Rare Disease Day 2026

Francesca’s story: A three-year undiagnosed rollercoaster

Resilience, self-advocacy and hope: Liv’s story

What life looks like now that I’ve stopped working

Defying expectations and shaping your own experience: Aleha’s story

What we’ve learnt from parenting a child with a pituitary condition

When the Treatment Becomes the Problem: Imali’s Cushing’s Syndrome Story

School, netball and a pituitary tumour – Tessa’s story of a childhood craniopharyngioma

Pushing for a diagnosis – Sophie’s rare disease story

How a thunderclap headache changed my life – Emily’s story

Running for rare disease awareness: Jerome’s story

Rare Disease Day 2025: Gail’s story

Sam’s story: waiting years for an acromegaly diagnosis

Trevor’s story- Successfully removing a pituitary tumour

How my fertility issues led to a pituitary adenoma diagnosis

Risa’s story: Living life to its fullest with Acromegaly

Mark’s story: Life after undergoing a craniotomy at 14

Edy’s story: Seeing clearly again after a non-functioning adenoma

Serena’s story: Surgery for prolactinoma

Peter’s story- 50 years anniversary of a pituitary condition

Steven’ story: A Cushing’s diagnosis after unexplained weight gain

Amy’s story: The first person with Type 1 Diabetes and AVP-Deficiency to hike Mt. Kilimanjaro

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