Rare Disease Day February 28th 2018

 

A very Happy Rare Disease Day to you all! Today hundreds of rare disease patient organisations from countries all over the world will hold awareness raising activities.

Rdd Logo Large

We will be celebrating by raising awareness on social media and via our website. Our Campaigns Manager, Rosa, is also looking forward to attending Rare Disease UK's parliamentary reception in Westminster at 1pm, and we are also delighted to have a feature printed in The Guardian. 

Rare Disease Day takes place on the last day of February each year. The main objective is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.

 

Cushing's Feature in The Guardian 

We are delighted that there will be a feature about rare diseases and Sammy’s Cushing's story in The Guardian today to mark Rare Disease Day. Sammy is our Patient & Family Services Coordinator. This should raise significant awareness. We partnered with Mediaplanet UK on the Rare Diseases Campaign in The Guardian newspaper, read article here

To mark Rare Disease Day we have had a cartoon leaflet that HRA pharma had designed using Sammy’s Cushing's story. Email rosa@pituitary.org.uk to order one of the free 100 copies we have in stock. 

 

Ways you can help us spread awareness today:

  • Support Rare Disease Day by adding this Facebook or Twitter filter to your profile for today.
  • Take part in the interactive #ShowYourRare social media campaign - paint your face and share your selfie on social media to show your support for the rare disease community!
  • Watch the official Rare Disease Day video here and then share it on your social media.
Painted Face

 

Happy Rare Disease day from The Pituitary Foundation!