Heatwave advice for diabetes insipidus patients
Everyone will lose more water and salt through sweating in hotter temperatures, and this can be a problem for people with diabetes insipidus (DI). You should ALWAYS obey your thirst and drink if you are thirsty.
If you take the intranasal version of desmopressin, this should be stored in the fridge, as long-term exposure to temperatures above 8 °C may reduce the effectiveness. All other desmopressin products are stable at room temperature.
A few patients with DI won’t have a thirst mechanism, and will need to (or need parents to) rely on keeping an eye on their fluid balance (water intake / urine output). They need to be aware that they will be losing more fluid (salt and water) through their skin than usual, when it is very hot. We advise to avoid prolonged exposure to the midday sun, and avoid extreme exercise / intense physical activities when it is hot. Children in this situation can be particularly vulnerable, and parents should consult their paediatric endocrine team if they are concerned about their child (or paediatric A&E if out-of-hours).
For further DI information, click here to read our booklet.