Coronavirus Advice

We have put these guidelines together to help pituitary patients stay safe.

Click here for guidance on COVID 19 vaccinations >

Latest Update

Click here to read the latest update regarding restrictions lifting in England on 19 July

Vaccines

We are receiving lots of enquiries about vaccinations, their safety and how they will be prioritised. Click here for the latest information

There is normally no need to increase hydrocortisone medication before receiving a vaccination, but we recommend following the usual sick day rules if you feel unwell afterwards

Medication Supplies

You should ensure you have enough spare steroid medication, and should contact your GP asking for at least one extra month to be prescribed, preferably two. In the event that GP is reluctant to prescribe more, please  refer them to the Society for Endocrinology’s statement regarding  advice to patients who  take replacement steroids (hydrocortisone, prednisolone, dexamethasone or plenadren) 

If you need to ask your GP to prescribe additional hydrocortisone, you can download our letter template here >

Useful Publications

For patient with adrenal insufficiency, it is important to follow the Hydrocortisone Sick Day Rules if you are unwell. You may need to increase your hydrocortisone dose during sickness so please read these carefully.

Our Patient Care Card is useful to have with you in the event of illness to make medical professionals aware of your condition 

Please note that orders in the shop may take around a week to arrive, however all our publications can be downloaded for free from our website. 

Society for Endocrinology advice for patients (28 April)

Advice for patients with adrenal insufficiency

Advice for patients with diabetes insipidus

Advice for patients with Cushing's Disease

For children with AI: 

Children AI patients are considerably less likely to be affected than adults with AI. The rules for adults are unlikely to apply to the majority of children. However, children should have increased oral steroids as they have been advised for any illness. It’s key that parents get medical help if the child is significantly unwell.

Please see sick day rules for children which can be downloaded for free

NHS Steroid Card

Steroid Card Jul20

The new NHS steroid card is for adults with adrenal insufficiency and should be carried with you at all times. Hard copies of the card can be collected from your local pharmacy, GP or endo team. These cards are currently being rolled out so your pharmacy may not have them yet, but it is worth talking to them

You can also download yourself here > to print at home or use as a background on your phone.

Vulnerability

The government has released new advice for those who are 'clinically vulnerable', as defined during the first wave. Please note that a pituitary condition alone does not classify you as clinically vulnerable

Government advice for clinically vulnerable >

On the basis of current data, there is no evidence that patients with adrenal insufficiency are at increased risk of contracting coronavirus (COVID-19). However, we know that patients with Addison’s disease (primary adrenal insufficiency) and congenital adrenal hyperplasia have a slightly increased overall risk of catching infections.

Patients who take steroids for endocrine conditions are at increased risk of becoming more unwell from coronavirus, and possibly having an adrenal crisis. The government has issued a list of people considered vulnerable and this includes anyone instructed to get a flu jab as an adult each year on medical grounds as well as all people whose medication includes steroid tablets. Whilst adrenal insufficiency is not specifically mentioned in this guidance, both of these criteria apply to patients with adrenal insufficiency.

FAQs 

Our Endocrine Nurse, Pauline, has put together this information answering common questions our patients may have. Last updated - April 2020, we are currently updating this page to reflect the current situation 

Click here 

Get Red Flagged

Get Red FlaggedNow is a good time to make sure you are red flagged with your local ambulance trust (where available). Click on the below links to find your local ambulance service. You can then contact them and ask to be electronically flagged as a steroid dependent patient.

See more here >

Ambulance trusts in 

England >    Wales >    Scotland >    Northern Ireland >

Advice for Self-Care

CaptureClick here to download our top tips for protecting your emotional and mental health 

 

 

Government Advice

The Foundation will continue to follow advice from the government and our Medical Committee and we will continue to share relevant updates via our website and social media.

https://www.gov.uk/coronavirus

https://www.nhs.uk/conditions/coronavirus-covid-19/