Diabetes Insipidus #PitHour on Twitter
Thank you so much to everyone who contributed to last nights #PitHour, discussing diabetes insipidus. We had some really great conversations and advice from everyone. We’re going to be sharing some highlights from the conversation.
There are a few challenges when it comes to DI. If you are an alcohol drinker its important to remain hydrated when you are drinking:
Beer causes diuresis. Desmopressin needs to be taken at the time that has been suggested. If there is diuresis due to beer consumption, drinking fluids as per thirst would be the best approach. Obviously, we are not talking about too much beer! #PitHour
— Niki Karavitaki (@Karavitaki_Niki) February 24, 2022
Lots of people said that one of the key issues was travelling or get stuck somewhere without medication. Some with DI shared some great advice about having medication in lots of different places. Remember we have keyring pillboxes for sale on our shop too!
I have a few tablets stashed in every bag/coat/car but I also know people locally who have either DI themselves or access to my house .
— Dylan Doxsey (@dylan_doxsey_) February 24, 2022
Other than that it'd be a drink/pee cycle until I could get home.
Hospital visits can also cause issues, so it’s great to see that people are using our Factsheet to A&E and Hospital Staff about Diabetes Insipidus to try and make the visits go more smoothly!
On a recent visit to A&E we handed this to Ambulance paramedics and to A&E staff pic.twitter.com/9Wa0ChyICJ
— Keith (@cestriankeef) February 24, 2022
Something else that came up a few times was taking medication when you are ill. We have diabetes insipidus sick day rules with advice on this.
@Pituitary_org @mileslevyendo @Karavitaki_Niki random question…with HC you have to double up when you have sickness/diarrhoea but what about your desmopressin, never really thought about losing fluids and if you can’t keep tablets down #pithour
— Lou (@LoobooLou) February 24, 2022
Thanks again to everyone who joined in last night. You can see the full 'moment' on our Twitter page, you don't need a Twitter account to be able to see this! We’ll be having our next #PitHour on 24th March, so be sure to join us then, topic tbc!
Keep an eye out on our socials for some other online events that we’re planning. Coming soon…
