Cushing's #PitHour on Twitter
Yesterday evening we held our third #PitHour of the year with the theme of Cushing's. This event allows people to ask questions and offer support to one another. Our previous #PitHour's this year have been on diabetes insipidus and prolactinomas.
Thank you to everyone who came along, we had some really interesting conversations and we hope that you all found it useful.
There was lots of challenges people had to do with Cushing's.
I think it would be teasing out all the different symptoms and not knowing if they are something to worry about or not. It is a multi-faceted illness and so could really do with more time with endo consultants, as there is so much to discuss and some things can get missed.— Amanda Brodie (@thepuballday) April 28, 2022
We met Clare, who is writing a book about her experiences with Cushing's as a teenager.
Sure! It centers around my symptoms and trying to find a diagnosis all while trying to survive high school. It also covers how my 1st & 2nd pituitary surgeries failed. I’m working on final art right now and it should be published in fall 2023. Titled “One in a Million” #PitHour— Claire Lordon (@ClaireLordon) April 28, 2022
We also asked people to share their top tips for those dealing with Cushing's. We really love this response from Caroline, which is all about empowering knowledge, which we are passionate about.
Knowledge is empowering so inform yourself and become your own expert. And never feel guilty about making time for self care. No one can pour from an empty vessel.— ⚫️ Caro McCavs (@mccavana_) April 28, 2022
Thanks again to everyone who joined in last night. Our next #PitHour is corrently tbc so keep an eye out on our social channels to fin dout more.
Keep an eye out on our socials for some other online events that we’re planning. Coming soon…