One of our volunteer ambassadors has started a podcast series called ‘From the other side of the fence’ to explain about his experiences as a carer and partner of a Cushing’s patient.
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On the 23rd May 2018 The Pituitary Foundation organised a focus group of Acromegaly patients, around the holistic management of Acromegaly. Find out more here.
Mick tells us his experiences of being diagnosed with acromegaly.
Michael tells us about his diagnosis story and how he has managed to go back to work.
21 year old Shorna from Bangladesh tells us her long diagnosis story.
"What started with a little lump in my chest, took me on a strange journey through treatment abroad, a macro prolactinoma diagnosis, and even starting my own businesses..."
Author, Francis DiClemente, tells his detailed story of being diagnosed with a Craniopharyngioma.
Russell Hawley tells us of his adrenal crisis experience.
"The last 18 months have been a roller-coaster of emotions but has also been an amazing journey of self-discovery. I’ve had to take a long hard look at my life and focus on the things that make me feel well and happy and get rid of the things that cause me upset and anxiety. It sounds like the logical way for any of us to live our lives but if we are completely honest, most of us don’t" - Read Emily's full pituitary story here.
Dan tells us about his 2017 as Volunteer Ambassador for The Pituitary Foundation and as a patient representative at events.