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Diabetes Insipidus and me - an 8 year old's story

An 8 year old's account of his experience with DI and his reasons for wanting to fundraise.

Diurnal appoints Clinigen to launch a European Patient Access programme for Infacort® and Chronocort

The Patient Access programme will enable physicians in Europe to prescribe Infacort® and Chronocort® as unlicensed medicines on a Named Patient basis for patients who have no other treatment options, ahead of anticipated European approval and commercial launch of the products.

Neil’s story - Kallmann's Syndrome

When I Discovered the Name of the Disease That Halted My Puberty.

Problems with the assessment of thyroid function and levothyroxine replacement levels in pituitary disease

Discussion by Dr Trevor Howelett about problems with the assessment of thyroid function and levothyroxine replacement levels in pituitary disease

General Members' meeting 2017

Would you like to attend our 2017 General Meeting?

Position statement regarding price hikes of medicines

Position statement regarding price hikes of medicines

A patient with two rare diseases - Dan's story

Dan tells us about his experiences of living with two rare diseases.

Research is the campaign theme for Rare Disease Day 2017

The Rare Disease Day theme this year is Research so we thought we'd share with you some our research findings from a recent survey.

Lawrie's story - journey of pituitary tumour diagnosis

Lawrie's journey before and after his pituitary tumour diagnosis.

What is a Prolactinoma?

A prolactinoma is a prolactin-producing tumour of the pituitary gland. This is a benign tumour, and not a brain tumour or cancer.