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Jessica's account of living with Prolactinoma as a young adult.
An 8 year old's account of his experience with DI and his reasons for wanting to fundraise.
Diurnal appoints Clinigen to launch a European Patient Access programme for Infacort® and Chronocort
The Patient Access programme will enable physicians in Europe to prescribe Infacort® and Chronocort® as unlicensed medicines on a Named Patient basis for patients who have no other treatment options, ahead of anticipated European approval and commercial launch of the products.
When I Discovered the Name of the Disease That Halted My Puberty.
Problems with the assessment of thyroid function and levothyroxine replacement levels in pituitary disease
Discussion by Dr Trevor Howelett about problems with the assessment of thyroid function and levothyroxine replacement levels in pituitary disease
Would you like to attend our 2017 General Meeting?
Position statement regarding price hikes of medicines
Dan tells us about his experiences of living with two rare diseases.
The Rare Disease Day theme this year is Research so we thought we'd share with you some our research findings from a recent survey.