21 year old Shorna from Bangladesh tells us her long diagnosis story.
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A research company called Cam Market Research Recruitment are currently conducting some research into Growth Hormone Deficiency and are looking for patients who fit the following criteria.
Members are invited to join us for our next General Meeting in London on Thursday 28th June 2018. We will have a guest speaker, and will discuss the annual report and accounts as well as providing updates on all of our work.
"What started with a little lump in my chest, took me on a strange journey through treatment abroad, a macro prolactinoma diagnosis, and even starting my own businesses..."
Author, Francis DiClemente, tells his detailed story of being diagnosed with a Craniopharyngioma.
November 2017 - Concordia International have given their latest update on the supplies of Hydrocortisone Sodium Phosphate (ex Efcortesol).
A research company are looking to speak to those who have been diagnosed with Acromegaly and Neuroendocrine Tumours, and those who provide care and assistance for those who have been diagnosed with these conditions.
We can refer your child (age 8-17 with a health challenge) for this South Health Challenge Camp at Bryanston School, Dorset.
One of our lovely members, Brenda, is planning a variety of her own fundraising activities this year. Here are the details of her first coffee morning on Saturday 7th April in Watford.
Over the past few years, Isabella's family have managed to raise over £20,000 for The Foundation through multiple activities. Their annual Golf Day is coming up so please read more details here.