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Research Study - Talking about your condition at work

Scope are carrying out research into experiences at work.

Research Study - For families of children taking Hydrocortisone

PANDA have therefore designed a questionnaire to help them understand what advice you are currently being given about hydrocortisone for your children.

Research Study - Growth Hormone Injection Questionnaires

Have you required growth hormone injections in the past 2 years or do you know someone who has?


Research is the campaign theme for Rare Disease Day 2017

The Rare Disease Day theme this year is Research so we thought we'd share with you some our research findings from a recent survey.