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Research is the campaign theme for Rare Disease Day 2017

The Rare Disease Day theme this year is Research so we thought we'd share with you some our research findings from a recent survey.

Lawrie's story - journey of pituitary tumour diagnosis

Lawrie's journey before and after his pituitary tumour diagnosis.

What is a Prolactinoma?

A prolactinoma is a prolactin-producing tumour of the pituitary gland. This is a benign tumour, and not a brain tumour or cancer.

Tara Palmer-Tomkinson pituitary tumour confirmed by family

Tara Palmer-Tomkinson's family confirm her cause of death was not linked to her pituitary tumour

Help us support Rare Disease Day 2017!

Read more about Rare Disease Day and help us support this campaign!

Prolactinoma - from the view of a positive pituitary family!

An extremely positive story from a family who have experienced pituitary conditions for years. 

Pituitary tumour vs brain tumour

Are pituitary tumours brain tumours?

Prolactinoma: a carer's story - review 11 years on

Looking back over the last 12 years, since Tony had his diagnosis, (pituitary Apoplexy from a macro prolactinoma,) we have at times, had quite a roller coaster of a ride!

Death of Tara Palmer-Tomkinson

Tara Palmer-Tomkinson has died at the age of 45.

Kieley's story - symptoms during pregnancy

A story of how Kieley coped with her early symptoms during the pregnancy of her first child.