A research company are looking to speak to those who have been diagnosed with Acromegaly and Neuroendocrine Tumours, and those who provide care and assistance for those who have been diagnosed with these conditions.
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We can refer your child (age 8-17 with a health challenge) for this South Health Challenge Camp at Bryanston School, Dorset.
One of our lovely members, Brenda, is planning a variety of her own fundraising activities this year. Here are the details of her first coffee morning on Saturday 7th April in Watford.
Over the past few years, Isabella's family have managed to raise over £20,000 for The Foundation through multiple activities. Their annual Golf Day is coming up so please read more details here.
Invitation to take part in a Genetic Alliance Survey - if you are a pituitary patient deficient in hormones, and how this affects you on a day to day basis.
Russell Hawley tells us of his adrenal crisis experience.
A messaage from a 9 year old inspiration!
A very Happy Rare Disease Day to you all! Today hundreds of rare disease patient organisations from countries all over the world will hold awareness raising activities. We will be celebrating by raising awareness on social media and via our website. Our Campaigns Manager, Rosa, is also looking forward to attending Rare Disease UK parliamentary reception in Westminster at 1pm, and we are also delighted to have a feature printed in The Guardian. Read the article to find out more and see the ways you can get involved.
"The last 18 months have been a roller-coaster of emotions but has also been an amazing journey of self-discovery. I’ve had to take a long hard look at my life and focus on the things that make me feel well and happy and get rid of the things that cause me upset and anxiety. It sounds like the logical way for any of us to live our lives but if we are completely honest, most of us don’t" - Read Emily's full pituitary story here.
We’d like to share with you a few of our volunteers’ achievements within the last week.