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Rare Disease Day February 28th 2018

28/02/2018

A very Happy Rare Disease Day to you all! Today hundreds of rare disease patient organisations from countries all over the world will hold awareness raising activities. We will be celebrating by raising awareness on social media and via our website. Our Campaigns Manager, Rosa, is also looking forward to attending Rare Disease UK parliamentary reception in Westminster at 1pm, and we are also delighted to have a feature printed in The Guardian. Read the article to find out more and see the ways you can get involved. 

Emily's pituitary journey

27/02/2018

"The last 18 months have been a roller-coaster of emotions but has also been an amazing journey of self-discovery.  I’ve had to take a long hard look at my life and focus on the things that make me feel well and happy and get rid of the things that cause me upset and anxiety.  It sounds like the logical way for any of us to live our lives but if we are completely honest, most of us don’t" - Read Emily's full pituitary story here.

Volunteer achievements this week

26/02/2018

We’d like to share with you a few of our volunteers’ achievements within the last week.

Resolution Chemicals Hydrocortisone tablets

23/02/2018

There is a new generic hydrocortisone tablet which is both lactose-free and maize free. Read here the description that  Resolution Chemicals have given about the new tablet.

UPDATE: Besins Healthcare Testogel 16.2mg Pump

22/02/2018

There is now a pump version available to deliver Testogel.

Dan’s 2017

19/02/2018

Dan tells us about his 2017 as Volunteer Ambassador for The Pituitary Foundation and as a patient representative at events. 

Diurnal update: adrenal insufficiency treatment for paediatric patients

19/02/2018

Diurnal authorised to produce adrenal insufficiency treatment for paediatric patients 

Troy's pituitary story

10/02/2018

"I’m not sure where to begin, so I’ll cover the highlights leading up to the loss of my pituitary gland....."

DHEA information

10/02/2018

DHEA in the news

Nick's pituitary journey

08/02/2018

Nick's pituitary journey began in 1997 and here he describes how the diagnosis effected both his work and personal life, and how he has learnt to manage his condition.