Edge Hill university is working with NHS clinicians to develop national education standards and resources for sick day/emergency management of adrenal insufficiency in children and young people.
They would like to hear from:
- parents of children with adrenal insufficiency (0-16 years)
- young people with adrenal insufficiency (10-16)
You can share your views in a 15 minute online survey or join an online discussion group (with times to suit you) which will last about an hour.
If you have any questions, would like more information contact Lucy Bray on [email protected] or text 07763667185.
The project will end in November.