Patient Blogs

This page contains some blogs from pituitary patients that you may find interesting or useful.

If you have a blog you'd like us to include on this page, please email

  • Acromegaly and Me - Rachel's vlog about her life with acromegaly
  • AcroTales - A podcast with patients who have acromegaly, discussing their experiences of diagnosis, treatment, living with the condition and more
  • Catherine's vlog - Catherine runs her own VA business and has made a few videos about her latest pituitary surgery, and how she's run her own business with her pituitary condition
  • Cushing's with Moxie - Focusses on pituitary tumours, Cushing's disease, secondary adrenal insufficiency and bilateral adrenalectomy. Please note this is a US based blog
  • Day in the Life of Shana - Shana has panhypopituitarism caused by a ganglioglioma
  • Gentle Giant - A blog by Andy who has gigantism due to secreting extra growth hormone
  • Hormone Deficient Hun - Lowrhi uses her instagram page to share her experiences and raise awareness of her evolving hypopituitarism and growth hormone deficiency as well as scoliosis, needle phobia and IBS
  • Hormones:The Inside Story - This podcast from the Society for Endocrinology covers lots of different topics about hormones. A great listen for anyone interested in learning more about hormones and how they work. Available on Spotify and Apple Podcasts
  • Journeys with Jessica - Jess shares her experiences of being diagnosed with a prolactinoma at 18 and how it affects her day to day life
  • My Pituitary Tumour - Carl documents his journey through pituitary surgery and recovery
  • My Rare Disease (podcast) - Sophie-Louise White shares her story of being diagnosed with a craniophrayngioma and living with adrenal insufficiency
  • Pevil's Place - Amongst a few different topics, Caz blogs about her experience with Cushing's and surgery recovery
  • Round 2 - Sian blogs her journey through her second surgery for Cushing's disease
  • The Mass and Me - Follows Rachael's story since being diagnosed with a macroadenoma aged 21, resulting in hypopituitarism
  • Time to Heal - A blog by one of our volunteers with a wide range of articles and information aimed at people with pituitary conditions