Local Support Groups

The Pituitary Foundation has a network of 35 Local Support Groups across the United Kingdom and Republic of Ireland.  These groups are run by dedicated volunteers who give their time to offer support and information to anyone affected by a pituitary condition living in their area. The menu to the left lists the area options, or alternatively you can look on the map below to find the group local to you.

Group

Meetings vary in frequency and content across the country and aim to give members the opportunity to learn about their conditions, both from specialists and the experiences of others. Group meetings are not only about supporting one another as patients and carers, but are also about having fun, making new friends and learning all manner of things that are not solely pituitary-related.

Our Local Support Groups are very ac tive in their areas and always help with fundraising and awareness events. These vary from region to region but regular activities have included:

  • Sponsored walks 
  • Quiz nights 
  • Bag packing at Supermarkets 
  • Race nights 
  • Organsing bucket collections 
  • Awareness stands at hospitals, supermarkets and town centres
  • Cheering squads at events such as the Cardiff Half Marathon and London Landmarks Half Marathon

 

We also see many of our Local Support Group members joining us at fundraising events that we organise across the UK with recent highlights including the London Landmarks Half Marathon, Edinburgh Marathon, ZipWorld North Wales, Snowdon trek, Ben Nevis trek, Scafell Pike trek, Brighton Marathon 

  

View Pituitary Foundation Local Support Groups Map in a larger map.

In the words of a support group member - "Being diagnosed with a pituitary tumour is a terrifying thing, but there are many support groups dotted around the UK who are there to help. 

"We have group meetings where someone comes in to give a talk on a specific matter or meetings just to catch up with each other.  It’s a welcome relief to chat to people with similar problems, comparing notes, passing on helpful hints and tips. 

"It’s fun too, to laugh with others at mishaps or things that have gone awry but from which we all recover.

"We’re strong and it’s surprising what we can actually cope with when we have to!!! We've got a pituitary tumour, but we're still human and fabulous people to meet.

"We are proud of what we cope with and are here to help others with their diagnosis."

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"20 years ago, as a volunteer standing in front of almost 90 patients and their families to launch our new Support Group - I was shaking and petrified. The warmth of the faces looking at me gave me courage and more hope than I’d ever felt in the 15 years since my diagnosis.

"These faces also bore the traces of everything pituitary can batter you with – isolation, fear, worry, pain, frustration, tiredness. As I finished speaking, these faces started to shine with relief and happiness, that here was going to be a group that would support them.

"There were some tears and people were turning to each other to nod. They could talk to other patients, share their questions and worries and gain reassurance.

"We could feel free to talk pituitary; we could find humour in the ridiculous that this condition brings; we could trust that our innermost feelings would be held tight and safe.

"Sometimes, we never actually need to say anything – you know when you walk in that meeting that words aren’t needed. You can ‘touch’ that support.

"We are a second family, who care, nurture, laugh and everyone simply ‘gets’ it. This has never stopped and works its magic month in, month out. 

"Indeed, The Pituitary Foundation made our ‘second family’ possible."