The Ireland Support Group provides much needed support and information for people diagnosed with rare conditions affecting the pituitary gland.

Support is available through phone conversations, email enquiries, answering your questions in a private Facebook groups. The group also organise online and in person meetings and an AGM welcome to all in the pituitary community including medical professionals.

The group will be very pleased to hear from you and can answer enquiries as well as offering information and support. Please get in touch with us using the contact form below.

The Solent & IOW Support Group covers the areas surrounding Portsmouth, Southampton & also the Isle of Wight. We hold regular, informal get-togethers with expert speakers.

We welcome everyone who is affected by pituitary conditions including friends and family, particularly those who are newly diagnosed. We always hold a raffle (prizes gratefully received on the day, although nothing to break the bank of course!)and refreshments are available too.

From time to time we hold patient led meetings which, through discussion, bring about different ‘hints and tips’ that help people with the day to day management of their pituitary condition. Additionally, if any of you out there have a particular subject or speaker you'd like to suggest for any of our gatherings, please contact us using the form below.

What to expect at a meeting

We appreciate it can be a daunting experience meeting new people for the first time so you definitely won’t be left to just stand there like the proverbial ‘lemon’. For our Portsmouth meetings there is a sign on display showing where to find us in the Garden Room. You will be welcomed as soon as you arrive and offered tea, coffee, fruit juice and biscuits too. We also host yearly meetings on the Isle of Wight and at Southampton General Hospital. You can see all our upcoming events below.

We do ask you to sign in giving your name, address, contact number & email address if you have one. This is so that we can send you our quarterly Newsletters. One of our committee members (pictured below) can chat to you about your pituitary condition and offer you guidance as to where to find more information. We will do our best to introduce you to someone else with the same condition. We’re a very friendly bunch, so come & give us a try!

Our most recent Newsletter is now available to download: June 2024

We can sometimes offer lifts from various areas, so if you are struggling to get to a meeting location please get in touch using the form below and we will try to assist. We look forward to meeting you for a chat, a sharing of experiences, the odd whinge, and a laugh or two as well.

2024 meetings

• Saturday 20 July - 10.30am for our Isle of Wight get-together at Lake Community Centre with Dr Victor Lawrence and you'll be pleased to hear that for 2024 we won't be clashing with the final tennis day at Wimbledon !
• Saturday 28 September - 10am Cosham Community Centre
• Saturday 7 December - 10am Cosham Community Centre

Location

Our Portsmouth area meetings are held in the Garden Room at Cosham Community Centre, Wootton Street, Cosham PO6 3AP (there is ample free parking together with a pay & display car-park next door). Our IoW get-togethers are held at Lake Community Centre, New Road, Lake, Sandown, IoW PO36 9LA.

The London Area Pituitary Patients support group (LAPPs) provides much needed support and information for people through quarterly meetings and newsletter.

We meet in different teaching hospitals across London when a Consultant Endocrinologist gives a talk on a Pituitary subject, followed by a Q&A session. We welcome anyone impacted by a pituitary condition, including friends and families, especially those who are newly diagnosed or who haven’t attended a support group session before. Come along and have a chat over a coffee/tea and swap experiences, make new friends as well as renew old acquaintances . We are very friendly and welcome everyone from London and the Home Counties.

Contact us using the form below if you would like to find out more or join a meeting. Click on the meeting below to find out more information about the specific events.

Location

LAPPs meet in different hospitals across London.

The Guildford and Surrey Support Group provides much needed support and information for people through meetings. Everyone is welcome to attend our meetings including those who are newly diagnosed or people supporting others with a condition.

Tea, coffee and biscuits are available and we also host a fun raffle.

If you would like more information, please get in touch below.

The Salisbury group provides support for anyone affected by a pituitary condition including friends and family members of those with conditions. Anyone is welcome to come along to meetings.

If you would like to find out more about the group or join one of our meetings, fill out the contact form below and we will get in touch. You can find out more about their upcoming events by clicking on the events below.

Location

The Quaker meeting house, 51 Wilton Road, Salisbury, SP2 7EP

Enquire about the group

Welcome to the support group that is spread over a vast geographical area from The Somerset Levels down to Land’s End, and proudly boasts of the best cream teas, pasties and cider. The Far South West Support Group provides much needed support and information for people through meetings. The group currently has 160 members and meetings rotate between 6 Hospital Endocrine centres in Exeter, Plymouth, Taunton, Torbay, Truro and Yeovil.

We try to host two meetings in each city. All meetings are open to anyone with pituitary problems, and importantly their partners, family or carers are equally welcomed. It is important to note that at all our meetings are attended by an Endocrine Consultant making any  questions raised are answered by  professionals.

At our informal meetings you will meet others with pituitary conditions, there will also be the opportunity to speak to medical professionals. You will learn how to fight your corner and get the best for your particular medical journey. Our meetings aim to start late afternoon and last for a couple of hours.

To find out more about the group or to join a meeting please contact us using the contact form below.

The Oxford Patient Support Group is for the support of anyone affected by a pituitary condition, including people who are newly diagnosed. Many in our group attend OCDEM at the Churchill Hospital in Oxford for their pituitary treatment.

We currently have around 60 people in our group. We aim to have around four meetings a year, and these are held virtually using Zoom. Sometimes we have a guest medical speaker who can give insight into their work.

We also aim to have social meetings during the year, where we can meet in person, get to know each other a bit more, and of course talk about the challenges of living with a pituitary condition. If you would like to join this friendly and helpful group, or find out what is going on and when the next meetings are, please fill out the contact form below and we will be in touch.

The Birmingham and West Midlands Support Group provides much needed support and information for people through meetings. We usually hold 3 or 4 meetings a year, at the University of Birmingham School in Harborne.

Everyone is welcome at meetings and you will find that they are a friendly and informal atmosphere. We try to have an expert speaker talking about a specific subject related to endocrinology or pituitary conditions.

We also have tea, coffee & biscuits, along with time for an informal chat. David and Nigel co-ordinate the group and can be contacted via email below.

Location

University of Birmingham School, 12 Weoley Park Rd, Birmingham B29 6QU

The Lancashire Support Group provides much needed support and information for people through meetings. They have members from Blackpool, Wigan, Bolton. Kendal, Preston, Lake District and further.

We usually meet every two months. We have formal meetings and enjoy meals out together. In the summer, we have Saturday outings and enjoy a walk in the countryside followed by a pub lunch. We are also going to ensure that the meeting has an option to join by zoom for those who can’t make the event in person.

We are always happy to welcome new members. We are a cheerful group and are always ready to listen and to offer help, information and advice for anyone affected by pituitary conditions. Family and Friends are also very welcome. Do come along and meet us.

Location

The Royal Oak, Market Place, Garstang, Preston, PR3 1ZA

The York Support Group provides much needed support and information for people through meetings. Meetings are a chance to support each other, and learn more about pituitary conditions with people who understand. Anyone affected by a pituitary condition is welcome at meetings including family and friends of those with conditions.

If you’d like to find out more about the group and the meetings please contact us using the contact form below.